What the doctor said

So I went to Nicosia today with my husband and two good friends.

Dr Katodritis is such a lovely doctor and has a sense of humour which I think is very important when having to deal with someone like me.

He said what I have obviously is very bad and I must start treatment immediately.  I go for a brain mask measurement on Monday and then start treatment full brain radiotherapy.  I take a chemotherapy tablet every day, cortisone, and anti emetics as well as anti seasure drugs too.  Last thing I want to do is end up rolling about on the floor.

I’m going to lose my hair.  I’m totally gutted about this even though I know its going to grow back so I’ll be off to get it all chopped tomorrow so the shock is gradual. I’ve always wanted to try something new so now’s the time 🙂

Life expectancy for me is a year. I have an incurable disease so I’m terminal now. Bollocks.  But doctor said I can get well soon and it depends on how well I respond to my treatment too.  So I’m staying positive even though I think I’ve been kicked in the stomach and my whole world is upside down. It’s so not fair. I have so much life in me. I don’t feel ill, don’t look ill, so why the hell am I ill?! I’ll fight it. With every thing I’ve got.

Not good news but miracles don’t happen over night.  I will have my miracle though. I will walk out of that oncology unit a miracle.

I went to try on some wigs after. Had a right laugh with my friends pulling silly faces and poses. Think the woman isnt used to people going in smiley trying on wigs cause they are gonna go bald from cancer. Sucky times. But you know me I make a joke out of everything. It can always be worse.

Once my treatment is over I will have to get re staged and hope its no where else in my body.

Here I come melanoma. I’m ready for you. I’m fighting you. I will be victorious.

I am going to live! Whoop Whoop

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10 Comments (+add yours?)

  1. Lloyd & Ann Owens
    Jan 21, 2011 @ 23:38:38

    Alethea, I always remember an old buddy of mine, called John Jordan. He was the guy who first founded the Jordan’s health food empire in Biggleswade. He was one of life’s larger-than-life characters. He used to fly a Boeing Stearman biplane…and got nicked and fined by the UK’s CAA for so many misdemeanours while flying! He was still playing rugby at 60. Anyway, one day, John was referred to a cancer specialist, who told him in no uncertain terms that his recently discovered cancer was serious and that he had 6 months – maybe 1 year at most – to live. The old sod lived another 10 years! Think of Michael Douglas too. So please, do not give up (I know you won’t anyway ‘cos you’re built of sterner stuff) because medical treatments do work and miracles do happen! We’re rooting for you. Hugs. Lloyd & Ann xx

    Reply

  2. Linda
    Jan 22, 2011 @ 00:16:57

    Hello
    I just happened upon your website while trying to find hope and comfort for my situation.
    I have stage 4 melanoma (brain, subqs, bones and nodes). I also have a two year old. I’m 31.
    On Monday I’m starting whole brain radiation and will lose my hair as well. Are you BRaf positive? I am and my onc says that there is a braf drug out there in clinical trials that also reaches the brain. The goal for me is to stop any other craziness in the brain and then get into the braf trial. I’m in Canada and the trial is supposed to start here in six weeks.
    I keep telling my doctors that Im going to be that miracle patient that they tell their other patients about. Miracles happen! I am going to beat this and I pray that you will too! We have a lot to live for.
    I’m on the MRF website under the profile name Linda J.
    My email address is lindajoyt@yahoo.ca
    I wish you all the best with the next step in the fight.
    Linda

    Reply

  3. Zhanna P. Rader
    Jan 22, 2011 @ 07:51:40

    You ARE going to live, Alethea. Such an intensive treatment should give good results. Are you still going to have your cat scan of the body on the 1st of February? I assume you are. You need to be reassured that you do not have any tumors any place else. You should not have any. Fight on bravely! Good luck.
    Love,
    Zhanna

    Reply

  4. Lesley & kev
    Jan 22, 2011 @ 07:57:17

    Alethea, I like your style, very close to mine, less than positive news, BOLLOCKS!! if you go on you-tube, you can get telly therapy and you can see Wogan & co giving therapy live!!!! my sense of humour!!!! I’m at the hospital 18th feb, so if you are there I look forward to you singing to me!!!
    Love hugs and support to you allxxx

    Reply

  5. Adam Ayres
    Jan 22, 2011 @ 09:07:23

    To my gorgeous wife Alethea, the love of my life. You are the most amazing person I know..I am sure there must be some Spartan warrior blood on your Greek Cypriot side of the family. We know it’s gloves on and time to fight, fight fight! I know you can and will beat this and I am with you every step of the way, whatever it takes, wherever you want to go and do we will make it happen. We know all our friends and family have the same attitutude, so with your strength and all our support, the best team is already in place. We love you very, very, very much. Adam & Christian X X X X X X X X X X X

    Reply

  6. David & Ann
    Jan 22, 2011 @ 17:22:31

    Alethea your are a bloody inspiration. Though just reading it makes us tearful we are with you all the way.Lots of love.

    Reply

  7. Eileen Williams
    Jan 22, 2011 @ 21:36:23

    Hi Alethea
    I saw about your diagnosis on face book and I just wanted to say go get em! Wishing you the speediest of recoveries and a long and happy life ahead. I think it is so brave of you to share your journey and I think one year from now we will be organising a big party for you to celebrate your recovery.
    Best wishes Eileen (ps I think we may have met at baby group ages ago.)

    Reply

  8. Ali
    Jan 22, 2011 @ 22:37:38

    If anyone can beat this, you can honey! Keep zapping those buggers with positive thoughts!

    You’re in our thoughts day and night. Stay strong. We love you so much. xx

    Reply

  9. sally
    Jan 22, 2011 @ 23:37:48

    Hello Alethea
    I have just found your blog through the macmillan site. I just wanted to say hi and to wish you well with your treatments. I`m sorry you are having to face all this after being given the all clear.
    I am going to catch up with your blog, and i really wish I had found these blogs when my sister was so ill as your words give so much strength and courage:)
    Cancer has been in my family for a long time and I have lost my family members (different cancers Alethea)
    I wish you all the success in the world with your next treatment and I hope you can get lots of cuddles from your dear little boy, he is almost the same age as my grandson they really are the light of our lives arn`t they.
    Lots of love to you and your family and i do hope I`m not intruding here.
    Take care
    love sally xxx

    Reply

  10. Laura Hanna
    Jan 24, 2011 @ 16:12:25

    Hello Alethea,
    You are amazing! I am utterly shocked by your news. Your diary notes are truly inspiring. Laughing in the face of adversity!
    I have no wonderful words or wise quotes, just a big hug. Laura

    Reply

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