6 down 14 to go!

Hi all.

So not long till I can come home already.

Side effects from the cortisone have well and truly kicked in.  My knee muscles gave up on me last night and I couldn’t walk. The pain was unbearable and poor Adam had to help me off the bed and on to the loo. Good husband material for sure.

I am mostly knackered with a side order of exhausted but when I can we get the bus in to town so I can stretch my legs (well up until yesterday) and get some fresh air and see some sites. We don’t get very far but we try.

I saw the doctor today. He is so nice and concerned about my knees had a good feel of them today and I have decreased my cortisone which is super fab. I am now down to 4mg twice daily instead of 8 then down to 2 on Friday and then one twice daily after! YAY that means puffiness will ease up, pain, swelling, water retention.  Cortisone is super bad for the body.

He said I’m being zapped in all the right places but I will not see the results till 4 to 6 weeks after treatment where I will require an MRI in Cyprus which will show the dead metastasis in my brain.  He gave me some funky head pictures that show all my tumours to see on paper so not sure if I can take a photo and add them on here.

So all in all everything is going well.  The chemo tablets have not affected me. Anti emetics are working so I can still eat (yay).

I remain positive with lots of swearing on bad days which I allow myself to hate the universe and be pissed off.  Confucius say it’s better to be pissed off than pissed on!  🙂

So that’s my recent news.  Treatment is working and I will know results after I get home.  Should be able to look for flights nearer the end as sometimes there are glitches with the machine and I may miss a day.  But can hopefully come home in about 19 or 20 days. Plenty of time to celebrate my son’s birthday! YAY for me and everyone.

Much love to all for all your fundraising, concerts and parties and so much more you have done.

Alethea x