The battle continues

So, recently lumps have appeared around my body, one on shoulder , two in right boob, one where my ribs are and one in my upper right bum cheek.  The one above shoulder needed removing as it was growing so I am currently waiting for the results.  They think its metastasis but we aren’t sure.

I’ve also been experiencing the worst stomach/tummy pains ever.  They have made me vomit on occasion too. So Wednesday I was checked in to the local general hospital where they gave me blood tests and a chest and abdomen CT scan and x-rays.  They said it may be crone’s disease, then that its an ulcer, then that its metastasis and that I will be needed intravenous chemo.  Needless to say I was devastated.   Then I checked out of the hospital and went to see my doctor who checked the CT and he said he said signs of a swollen bowl are visible and fluid in the gut.   So I am having some fluid drained to be sent off for testing to see if there actually is metastasis and also waiting for the biopsy of the lump results to see if that is metastasis too.  Talk about a difference in opinions.

My poor veins are all buggered, broke and none existent in my left arm and have that many holes I look like a junky lol   Now Im on some strong pain relief thank god and I’m on the waiting game.

So I can either have metastasis or not.. here’s hoping not.

Absolutely fed up but hopeful.

Thank you

Just a quick note to thank you all for your inspirational commnets and for willing me through this difficult journey. You make me want to be stronger.

I hope you and your families who may be fighting the same thing remain strong too.

Alethea x

Side effects and more

So I’m getting super fed up now of all this disease. It’s so hard to keep patient and I’m starting to fly off the handle at the simplest of things.

My last course of chemo really knackered me out. My hemoglobin dropped super low so on Wednesday I had a blood transfusion. It took forever. 3 pints of blood each take 3 hours and then there is the saline in between to wash out the vein. I didn’t leave the clinic till 10 at night.  My blood pressure and temperature was taken every half an hour so I couldn’t sleep in between much either.  I feel better for it today though less tired and weak. Before that I couldn’t make it up my stairs without stopping out of breath.

My tummy (as opposed to my stomach) is constantly hurting especially in the lower region. Another side effect of chemo, cortisone and other tablets that aren’t meant for the healthy human body.  I have reduced cortisone though to 1.5mg per day which is great for me as soon I am hoping to stop them all together, which for me would be like I’m actually better. I’m 1.5mg away and MRI from being better.

My hair is sprouting but it’s like a month for a tiny tiny bit of growth. I do hope it grows. The part where I didn’t have radiotherapy is growing so I have to keep shaving it as its on the lower back of my head.

Being a mum with melanoma is really hard. Last year I wasn’t able to look after my son properly as my right arm was operated on.  My son realized I was poorly and started to come to me less and less. But he is what kept me going every day after my radiotherapy when I picked up from school.  This year it’s worse. exhaustion, lack of strength I can’t carry him down our stairs or up them. Can’t sit on the floor to play with him (can’t get up again) so my darling husband has been working his butt off really looking after us both. My son rarely comes to me cause he senses I’m not well enough.  I haven’t been able to drop him off at school or pick him up as much as I would have liked so he’s super close to his Nana and his Dad but I feel like not me. It’s hard.   Now that I am getting stronger though I plan to bring him home earlier from school and hopefully re bond.

I just want to be free of this disease. I’m so fed up of being sick and really cannot wait till I am better. I guess I’ll never quite be the old me again. Life threatening diseases have that side effect on people I think. That’s the only good thing. You appreciate life more.

 

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