The battle continues

So, recently lumps have appeared around my body, one on shoulder , two in right boob, one where my ribs are and one in my upper right bum cheek.  The one above shoulder needed removing as it was growing so I am currently waiting for the results.  They think its metastasis but we aren’t sure.

I’ve also been experiencing the worst stomach/tummy pains ever.  They have made me vomit on occasion too. So Wednesday I was checked in to the local general hospital where they gave me blood tests and a chest and abdomen CT scan and x-rays.  They said it may be crone’s disease, then that its an ulcer, then that its metastasis and that I will be needed intravenous chemo.  Needless to say I was devastated.   Then I checked out of the hospital and went to see my doctor who checked the CT and he said he said signs of a swollen bowl are visible and fluid in the gut.   So I am having some fluid drained to be sent off for testing to see if there actually is metastasis and also waiting for the biopsy of the lump results to see if that is metastasis too.  Talk about a difference in opinions.

My poor veins are all buggered, broke and none existent in my left arm and have that many holes I look like a junky lol   Now Im on some strong pain relief thank god and I’m on the waiting game.

So I can either have metastasis or not.. here’s hoping not.

Absolutely fed up but hopeful.

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3 down 6 to go

So I got my results today.  Not much has changed yet as treatment takes a while to kick in however I only have SIX tumours now as opposed to 9. YAY 

Charlie is still 2.4cms big and the brain swelling is still quite visible around it so I have to continue with cortisone for a while longer.  The doctor said I must increase my chemo tablet dosage. 

So its good news as 3 tumours are gone and I will see more progress in another month when I have my next MRI after my next chemo tablet course and the radiotherapy does its work. It’s still early days!

It would have been super great had I got they are all gone news today but one has to look at the glass as half full and not half empty.  

Guess I’ll be bald for a while longer then!  But I’m nearly halfway there.  🙂

Road to recovery

Its quite a long one.  You get sick, you get diagnosed, you get treatment then you need to start getting better. Everything changes about you.

My legs are still weak and its frustrating getting up off chairs which sometimes cause me headaches and dizziness so I have to do things slowly.  I darent squat cause I’d never get back up again but I am able to get up off the floor now by myself which is a bonus.   My head is bald apart from a few stubly bits as it appears the chemo tablets made what little had grown fall out.

The doctor prescribed me some stronger anti emetics so nausea stopped and I was able to eat normally again which was fab.  I am off them now for a three week break.

Tomorrow I am having an ultra sound scan to my armpit area as I have a sore bit there which could be scar tissue but its best to get it check out and I a also having my follow up MRI too.

Fingers and toes crossed for good news.

Update

So been back in Cyprus a week and what have I been up to? Not a lot! lol

Have been spending lots of time with family as my brother is over till Monday.   Lots of family time and parents, or at our house.  Christian had party at school with his classmates and they took some lovely photos and made a booklet for us to keep for his birthday and then we went to a lovely restaurant in Paphos where I took a cake and we celebrated his and my dads birthday although the cake said 2 on it on Saturday. 🙂

After my headache scare and now being back on my corts I’m back to normal again. Thank god.  And I went to see the doctor on Friday and I am to start my chemo tablets next week I think. Also physiotherapy for my legs.   I can’t believe how weaker they are in comparison to before I left.  I can’t carry my son up and down our house stairs anymore Its impossible but he is much heavier lol. The other day he slipped and wanted me to carry him down the stairs so instead I sat down next to him and we came down them on our bum together.. haha

So all in all I am feeling good taking things easy but also trying to get out every day to walk.  Now that I feel better I am itching for a night out.  Wanted to have it on Friday but that was too soon out of the clinic.  Not sure If I will wait for my new MRI results or not that way I’ll have something to officially celebrate I hope.   Either way my I cant wait to go sing at my local karaoke bar.. and my legs really fancy a boogie..  from the knee up haha

Hope you are all well.

Cortisone is my friend..

…..I found out the hard way.

Monday night I woke up at 2am with a headache. Not the kind that you take two Panadol and go back to sleep.  Although I did take two Panadol ha.  But the pain was bad. I did manage to get back to sleep but when I woke up in the morning I was in a state. I couldn’t even get my son dressed for school. So along came my mum as usual bless her. 

By 10 am I was getting worse and worse and I was sick.  Then mum popped by after and we called the doctor and he said I am not to stop with my cortisone yet its too soon as my brain is swollen from radiotherapy. Suggested I take some cortisone.  Then I got even worse and was unable to sit up or eat or drink so I could take my tablets.  Cant explain the pain but its like the worst migraine you have ever had x10 all over your head and eyes.   So we called the doctor again and he said I had to be admitted to the clinic.

Once there I was given a cortisone by drip but the headaches were frequent and long-lasting and I was sick again and again. Eventually I fell asleep from exhaustion and when I woke up at about 430ish I finally felt better.     

What an awful day. I think its the worse day since my diagnosis. My headaches would stop when I was sick before but this time they didnt.  A migraine from 2am till 3pm the next day is enough to send someone mad I think..so cortisone may be bad for my body but its great for my head..

Good news is they allowed me home this morning so I am once again home.

I’ve decided to put my night out on hold till my birthday next month.   

I’ve still got to have 4 courses of chemo tablets starting next week. One week on 3 weeks off and more MRI’s of my brain. 

So that’s all for now.   Back on my cortisone tablets as although they are quite bad for you, they are clearly also good for you.. well in my case anyway.. hurrah for pain free days.  🙂

Almost done!

So, two more treatments to go and I am finished! Yipeeeeee

I finally took the plunge and shaved my head on Wednesday. It feels much better and I am not upset about it anymore. The hair falling out is more traumatic than anything else. Now I have a velcro head ha It feels strange to the touch but doesn’t look too bad! 🙂

The doctor said I am to have 3 MRI’s when I return to Cyprus of my brain to monitor the results of the treatment and 4 courses of chemo tablets too. But they haven’t bothered me at all. Apart from tiredness, hair loss, and the occasional loss of mobility my side effects have been few and I’m so lucky for that.

So once my treatment is finished officially.. we can check out of this hotel into something much cheaper and fly home on the 14th. Whoop whoop! I get to celebrate my sons 2nd birthday with him! I can hardly wait to see him.

Thank you to all of you who have raised funds for my family and made my treatment possible. You are all amazing kind and generous and have touched my heart. Thank you to my family for looking after my son all this time and of course my darling husband for all the things you have done for me too.

Chest pains with a side order of panic attacks

So last night I had really bad chest pains and difficulty breathing which then resulted in a big fat panick attack. One of the good things about this hotel, is that its more a patient hotel rather than a holiday hotel, so the receptionists etc are also nurses.   So Adam whent and fetched one and she said I had to go to A&E.  So off she rolled me in a wheel chair and they gave me a an ecg, blood tests and blood pressure checking, the usual stuff really and said it’s quite possibly the cortisone. DAMN that stupid fing cortisone.  Its given me nothing but hassle.  I’m down to  two mgs a day and it’s still effecting me.   Bad stuff that.

So today I have to have another ecg and see what the blood tests say when I see my doctor.   I feel very rough today, hard to move around it’s as if someone has sucked out all my air and energy and left wobbly leftovers.   arghhh 

Getting zapped at 12 and its my 11th time! I’ve passed the half way mark.   All being well, I am booked to go home on the 14th of March! YIPEEEEEE

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