3 down 6 to go

So I got my results today.  Not much has changed yet as treatment takes a while to kick in however I only have SIX tumours now as opposed to 9. YAY 

Charlie is still 2.4cms big and the brain swelling is still quite visible around it so I have to continue with cortisone for a while longer.  The doctor said I must increase my chemo tablet dosage. 

So its good news as 3 tumours are gone and I will see more progress in another month when I have my next MRI after my next chemo tablet course and the radiotherapy does its work. It’s still early days!

It would have been super great had I got they are all gone news today but one has to look at the glass as half full and not half empty.  

Guess I’ll be bald for a while longer then!  But I’m nearly halfway there.  🙂

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9 tumors not 10!

Hello.

So the doctor today told me I only have 9 brain tumours.  That has pleased me lots. Silly really. But its better than 10. This was discovered from the recent CT and MRI scan I had last week.  Fab result.

They are still doing the brain mapping so treatment will not start till Thursday probably the Dr said.   Tomotherapy treatment which is not available in Cyprus is a CT scan machine which will give HIGH dosages of radiotherapy direct to the tumours and kill them as well as any other affected area of metastasis.

I start my chemo tablets the same day I start my radiotherapy too.  I take cortisone tablets still which make me eat like a horse. ALL day. The weight is piling on but I can’t stop eating and its annoying.  Most days I cope but there are days when I feel my body weighs a ton and I cannot move. I’m like a rocking back and forth mess and I last night I didn’t sleep well at all and was awake from 6 am going nuts with worry.  I hate days like that.   But once I manage to pull myself together and eat I am ok.  Food appears to be my best friend at the moment.   Poor Adam gets to deal with a real cow bag sometimes. Snappy as hell one minute and go away leave me alone the next. 

We have been out into Bamberg a few times, fresh air and walks are good for me doctor said cause the cortisone is affecting my joints so now I have a faithful crutch to take everywhere too. I’m a regular pensioner in a 35-year-old body. ha     Bus journey is short and cheap too.   Its very beautiful here.  

I miss my son terribly.  I wish I had brought a teddy of his or top or something so I could snuggle up to at night. I just wanna smother him and cuddle him and kiss him. Skype helps with that a little but doesn’t help the cuddle cravings.

We have found a few supermarkets so we can stock up our little fridge to keep my batteries going throughout the day which helps keep food costs down.  Amazing how much you need when you don’t have a cooker or any facilities to use.  But they do have hot water on tap here so thats somet.

They don’t have tea. Normal tea. They have all the tea you can think of, flavoured, vitamined, minted, sugared, green, bright orange but no normal tea. And sometimes I nice cup of tea makes it all better.  And their toilet paper is SAND paper. I kid you not. NO JOKE its like cheese greater paper. haha And it’s everywhere, even in restaurants.  Hard asses here I swear. haha   So much for my sweethoneybums (those of u know that nickname for me that is).

Still. Everyone is nice.  My german that I did in school years ago stuck with me and I am so pleased cause I can order delivery and I can ask for stuff and communicate basic with everyone.  Not just a pretty face me. ha

Well here are some photos of the clinic.  The hotel is stuck to the left of it, its only one floor though. I single floor hotel. lol

Clinic

 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 

Hotel just on left of clinic

 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 

CT Results

Hi all

Just a quick note to say that my CT results of my body are fully clear. No more tumours.

So 10 down and ten to go.

I am so relieved. Silly as I feel lucky. Thank god and all of you for your prayers that worked.

xx

MRI Results

Hi all

I got my MRI results.  It turns out I have 10 brain tumours and the metastasis has started to spread to the bone in my head.  Scary stuff.

There is a doctor in Germany who is ready to start to fix me, so I am currently on a race to raise 14,000 Euros just for the treatment. This is the initial stereotactic brain radiotherapy.  Not sure what comes with it but after probably chemo.  More on this later.

I am being set up as a charity on Monday so people can make donations to an official account via my solicitors in Paphos but I will aslo provide a UK bank account too.

I have made a facebook page (other than my persona account) so you all know whats when – this will include bank account and donation areas.  Please join it http://www.facebook.com/#!/pages/Aletheas-melanoma-fight/142237025835795

I am feeling increasingly tired most days, its hard with my son as some days he wants nothing to do with me as he can sense I am upset even though I sing and act silly.   

Soon I can go to Germany and all this will be a bad dream and I can start getting ready.  Here is where I am due  to go http://www.sozialstiftung-bamberg.de/

My right affected side of the brain as u look at me 

One of my tumours

What the doctor said

So I went to Nicosia today with my husband and two good friends.

Dr Katodritis is such a lovely doctor and has a sense of humour which I think is very important when having to deal with someone like me.

He said what I have obviously is very bad and I must start treatment immediately.  I go for a brain mask measurement on Monday and then start treatment full brain radiotherapy.  I take a chemotherapy tablet every day, cortisone, and anti emetics as well as anti seasure drugs too.  Last thing I want to do is end up rolling about on the floor.

I’m going to lose my hair.  I’m totally gutted about this even though I know its going to grow back so I’ll be off to get it all chopped tomorrow so the shock is gradual. I’ve always wanted to try something new so now’s the time 🙂

Life expectancy for me is a year. I have an incurable disease so I’m terminal now. Bollocks.  But doctor said I can get well soon and it depends on how well I respond to my treatment too.  So I’m staying positive even though I think I’ve been kicked in the stomach and my whole world is upside down. It’s so not fair. I have so much life in me. I don’t feel ill, don’t look ill, so why the hell am I ill?! I’ll fight it. With every thing I’ve got.

Not good news but miracles don’t happen over night.  I will have my miracle though. I will walk out of that oncology unit a miracle.

I went to try on some wigs after. Had a right laugh with my friends pulling silly faces and poses. Think the woman isnt used to people going in smiley trying on wigs cause they are gonna go bald from cancer. Sucky times. But you know me I make a joke out of everything. It can always be worse.

Once my treatment is over I will have to get re staged and hope its no where else in my body.

Here I come melanoma. I’m ready for you. I’m fighting you. I will be victorious.

I am going to live! Whoop Whoop

There’s stupid and then there’s me!

Ok this is no joking matter really.

Had a day of in-house visitors today; mum came and did some ironing bless her and my good friend Mel popped round with cake and her beautiful daughter Calista. She knows the way to my heart. Meanwhile my husband went with my scans to the oncologist and she gave the impression that there are more than one tumor. So I checked the paper and there it is.. as clear as day. 7 metastatic tumours.. SEVEN..  yesterday I was like “well I only have one so i’ll be fine”.. now I have 7. well I had 7 yesterday.. so my new line is “I only have 7” it could be worse. It could be a WHOLE lot better but it’s not.

I woke up today so that’s always a good sign. As long as I stick to the breathing in and out again I’ll be fine. Roll on the radiotherapy. Not sure when I start but probably next week I’ll be back on George’s cancer bus.. I’ll be there to cheer everyone up.. perhaps I can act even more silly as I can say “I can’t help it I have 7 brain tumours don’t you know..”

Bloody hell.  Cant really call them all charlie..but I’m not gonna name them all.. so now I’m snow-white and the 7 dwarfs.. after all I don’t sunbathe anymore.. so Happy (from when I’m acting silly) Sleepy (from when I’m knackered),  Sneezy (cause I always do that) grumpy (for when I just can’t take anymore and Im pissed off and swearing) Dopey (cause I was yesterday when i thought I had only one when it clearly said 7) Doc (for when I chant my get well and shrinking chants to them) and Bashful (for when I’m shy when all hands are on me)

So there you go.. 7 personality Alethea.. 🙂 

Today I’m Dopey. Clearly.

Brain tumor

Just when you think things couldn’t get any worse.. they do.

I had another bad headache this morning so I decided to go the general hospital a&e to get some help and insist on a scan. I was soo poorly.

They put me on a drip and said they can’t bring my scan forward as I wasnt an emergency; I hadn’t been in an accident.. so my sister called my oncologist, whilst my mum yelled at the a&e doctor and said what if she’s got a brain tumour? will she be an emergency then? Anyway my oncologist spoke to the doctor and finally I was wheeled in for a brain scan.

Results are I have a brain tumor. 24.2×17.1mm in size in the frontal right side of my brain.

meet Charlie, my brain tumour

 

So this is Charlie. As I already used Bob for my drain I chose Charlie for my tumour, wouldn’t want to get repetitive now would I!

It’s not fair, I’m too young and I want more kids and I want to see my son roll his eyeballs at me when I shout LOVE YOU when I drop him off at high school. Hopefully they will zap Charlie to death, pump me with stuff that will make me go bald and look like something from a zoo and get rid of it and I will do what ever it takes.

For now I have to take cortisone tablets 3 times a day and something for my stomach. So I’m gonna be looking like a puffer fish before long.. yummy.

So once again, I am praying for a speedy recovery, to god, Buddy, Allah and all who are listening to my prayers. Friends unite and pray for me and all the other cancer sufferers out there and for gods sake STAY OUT OF THE SUN!

Wish my news was better.  Will find out more when I see my oncologist.

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