To interferon or not to interferon, that is the question

Yesterday I had another doctors visit in Nicosia oncology center.  First I visited the radiotherapist doctor and showed her my burns.. she was shocked. Both her and the nurse felt for me bless them and couldn’t believe the state of me.  They quickly said I had to be monitored closely from now on till I am healed properly. I have to say that if you suffer from them that the only thing that works are melolin patches from UK. They don’t stick to your skin.  Unfortunately they don’t have them in Cyprus and what they gave me ripped my skin off today.

Then I had a meeting with the oncologist, he went on to tell me all about interferon and what I would need to do.   I would have to be admitted into hospital for the first week and have it intravenously, then for three weeks I would need to travel up by bus again every day and have it intravenously. So that would be September out of the window.  Then I would have to have injections 3 times a week for a whole year.  Side effects include, flu like symptoms fever, chills, headache, muscle ache, nausea, vomiting that can last about 1 to 12 hours after receiving a dose. So that would be a whole year out the window.  This is for a drug that does boost your immune system to help slow down the recurrence of melanoma but does not stop it from recurrence.

He said I am at high risk. Chances are it will come back. Because thats what statistics say.  So I said OK, I’ll do it.    Then I spent all night thinking about it and researching it and talking with family about whether or not I should do it.   I can boost my own immune system myself, by eating properly, treating my body better by joining an exercise class and not filling it  up with toxins.

So today I called the doctor and said I do not wish to have the interferon.

This means I get to have my life back. This means I can return to work in September and start being part of society again.

All I hope is that my melanoma doesn’t come back.  That I am able to keep it at bay by having a brand new lifestyle. Away from stress, bad things and bad people.  Fill my life with real friends, my family and my gorgeous son.

Here is the progress of my armpit, I have to say its getting much better and all my new pink skin is coming through quite nicely 🙂

Taken 17/08

Taken 19/08

The healing process

So, the healing process is also a long one. I leave wet patches where I lie, and skin bits too. I’m all in all a walking gross person.  My corn flake armpit as my husband calls it, needs constant attention, has been leaking all over my sheets and tops and really is quite painful. I’m in a strop most of the time then laughing at the state of me the next. I think I’ve lost my mind.

My poor son wonders what on earth he has done wrong when he reaches to grab me and shoves his hand in my armpit. Bless him.   Poor hubby may as well be sleeping in another room as he has to be so careful at night.. we have an invisible layer of eggs down the middle haha

I think I am starting to heal. Its spreading away from my armpit towards my back and my new skin is starting to come through. Its pinker than a newborns bottom so I’m going to be multicoloured and multi skinned when I am finished.

I am seeing the doctor on the 18th. He wants to give me an ultrasound scan and discuss the possibility of me having interferon.  I’ve decided that if any drug or trial is offered to me, I will not turn it down.  After all this is my life we are talking about and its worth everything I’ve got and haven’t got. So I will do what ever it takes to save it. Wouldn’t you?  Id hate to wake up in 2 years with another melanoma wondering what if I’d tried what they offered in the first place!

Apart from not doing much at all recently I’ve done a little of nothing too. Such an exciting life I lead. It makes a change though. I’d much rather choose a nice quiet life over bus rides and flakey snake-skin any day..

Here are the latest photos. Warning as they are not pretty.

Taken 13/08

Taken 14/08